The Captain will not be accepting your “Ice Bucket Challenge”.
Thank you for thinking of me, but no. I will not be dumping a bucket of ice water
over my head, and I will not be writing a check to ALSA for $100.
For those of you who have been hiding under a rock of
recent, let me explain. The “Ice Bucket Challenge” is an impromptu fundraiser
for the ALS Association, intended to raise awareness and money for research in the
fight to cure Amyotrophic Lateral Sclerosis. It is widely known as “Lou Gehrig’s
Disease”, after the great baseball player who succumbed to the disease in 1941
at age 37.
ALS is a progressive neurodegenerative disease that affects
nerve cells in the brain and spinal cord. Gradual loss of all voluntary muscle
control follows until the person is completely paralyzed, with death being the
ultimate outcome.
It is a terrible disease, and worthy of your support toward
finding a cure. But I will not be writing a check today.
I have watched your IBC videos with amusement. Some are
quite clever – from Charlie Sheen dumping a bucket containing $10,000 cash over
his head (which he claims he donated to ALSA) to Sir Patrick Stewart calmly
writing a check (presumably to ALSA) then retrieving a couple cubes from his
ice bucket for his Scotch.
This charitable phenomenon has sparked a creative fire in me,
I will admit. I have thought of a half-dozen great IBC videos for the Captain
to star in. But I won’t make them because I am not participating.
Because we like lists, here are seven reasons why I am
not participating in the ALS Ice Bucket Challenge:
1) Bandwagons. Those who know me know that
I don’t jump on every bandwagon that passes through town. I try to be
intentional about what I do. I do my research, and then I try to make an
informed decision. What I have found lacking from so many of the IBC videos is
an explanation of what ALS is and why ALSA needs my money. Many refer to ALSA
as “a worthy cause”, but few show any hint of knowledge about the disease or the organization. It’s
as though the dumping of ice water onto someone is the important part of this
campaign. It’s not. It’s about fundraising. It’s about awareness.
2) Water. More than 780 million people
worldwide lack access to clean drinking water. More than 3.4 million people died
each year due to water, sanitation, and hygiene-related issues. What’s more, a
persistent drought in the southwestern portion of the United States is creating
significant issues here as well. I know that a five-gallon bucket of ice water
is not going to change any of that, but it seems callous to intentionally waste
even that much water for the sport of fundraising.
3) Research. What do we really know about
the ALS Association? According to its annual reports, in 2012 only 7.71% of
their budget was spent on research; administration and fundraising accounted
for another 28.65%. In 2013 it reported 9.3% of its budget went to research. But
in the January 2014 report, the research budget jumped suspiciously
miraculously to 28%. I’m still looking for an answer to how ALSA can increase
its research budget by 3X without significantly affecting its bottom line.
4) Accountability. The “Ice Bucket
Challenge” was not initiated by ALSA. To date, the association has reaped an unexpected
windfall of $80 million and counting – which is more than its annual budget.
Now the association must decide what to do with these unrestricted funds. Yes, “unrestricted”.
ALSA can spend your donation any way it chooses. I have no reason to believe
they won’t handle it responsibly. But realizing this is a one-time opportunity,
some on the board would like to invest the money to undergird a woefully
underfunded endowment to provide for the future. Others, remembering how
generous people were to the Red Cross after 9-11 and how the Red Cross received
a “black eye” for choosing to hold some of that money for “future needs” instead
of applying it all to the 9-11 recovery efforts, feel the need to spend it now.
But simply throwing 10X more money at research this year is not good
stewardship and is not necessarily going to help arrive at a cure any faster.
5) Balance. Why ALS? ALS is identified in
5,600 people per year, usually Caucasian males between the ages of 40 and 70. Half
of those will live three or more years after diagnosis; ten percent will live
more than ten years after diagnosis. But compare that to Sickle Cell Anemia
(just to use one example), another (presently) incurable disease, but one that
more commonly affects African-American men. SCA affects about one in every 500
African-American births, or some 70-100,000 persons per year. Due to improved treatment
and care, a person born with SCA can expect to live into their mid-40s. Relatively
speaking, the need seems to be greater and more urgent for Sickle Cell Anemia
research, but I don’t see anyone dumping ice water over their heads for this
disease. How many other organizations would also like a donation from you?
6) Money. I tithe to my church. I financially
support a local organization that provides food,
shelter, and financial support to needy families in our community. I send
donations to a couple charitable organizations in Memphis which I know do good work
in areas about which I am passionate. I am constantly being hit up to support
the local schools, the local firefighters, the local sheriff’s office, the local Girl
Scouts, etc. And because of my job, I regularly find myself filling up a
stranger’s gas tank or buying him lunch. In any given household budget, there
is only so much money available for charitable work. No amount of public shaming
challenging will change that reality.
7) Cold Water. The Captain will never
intentionally dump a bucket of ice water over his head!
"Humbuggery," you say. "It's just a fun way to raise money for a worthy cause."
Perhaps. But think about the points above as you fill up your bucket of ice water. Are you really achieving what you intend to do? Is there another way? Perhaps a better way?
I am not at all saying you should not donate to ALSA – if
that is what you want to do.
I am not at all saying you should not dump a bucket of ice
water over your head – if that is what you want to do.
I am simply saying I will not.
Thank You, but No.